I Didn’t Sleep In 2008

26 Feb

Everyone should have kids. They are the greatest joy in the world. But they are also terrorists. You’ll realize this as soon as they are born and they start using sleep deprivation to break you.
-Ray Romano quotes

By the time my mom moved in with me in April of 2008 I think I had been slowly losing my mind.

True, it was partly because of my complete submersion into Oli-land and lack of full emotional participation in anything other than blind baby support. It was also due to a familiar term recognized world wide by new parents. And talked about, dreaded, cursed, and feared by the blind community.

Sleep deprivation.

When my girl was 6 months old she just simply stopped sleeping.

She was on her own little planet where there was no 24 hour day. Sometimes her day was 20 hours, sometimes it was 27 hours. There was absolutely no sleep schedule. She would go to bed at 7pm get up at 1am, be up until 9am, go back to sleep until 2pm, get up and stay up until 12am, sleep until 4am. . .every single day was different.

When I went to work with bags under my eyes, mismatched socks, and had forgotten to run a brush through my hair, the new moms in the unit would spot me across the room like a bug drawn to a light. They knew what I was suffering from and they were always ready to inundate me with solutions to Oli’s sleep problem.

“Put her to bed at the same time every night. Make sure she’s had enough to eat. Bath her with this soap and then apply this lotion. Play this song before bedtime…” The list goes on and on.

I listened and I tried anything anyone ever suggested to me. Nothing worked. The only thing I refused to try was putting a dab of alcohol in her bottle at night. But that may have simply been because I didn’t want to share and needed every last drop.

I read books on sleep, googled sleep solutions for blind babies, talked with other parents of blind children, asked her pediatrician, doctors who worked in my unit, and random strangers at the grocery store who looked just like me. A soundly sleeping infant in a car seat and a mother looking like she had just returned from war, hadn’t eaten in a week, showered in 2, or slept for 3. We would bond in the frozen foods section describing last nights battle in which our child always defeated us. Granted, their baby was only a month old and mine was turning one year.

Eventually by the time my mom arrived I had just given up.

I was totally convinced that Oli was never going to sleep again.

Flies, Trash, and Dead Bodies

25 Feb

“Like a corpse left in a garbage dumpster in the middle of summer.” -Sin City quotes

Right around the time that Oli turned 1 and got her first pair of prosthetic eyes, my mom moved in with me to help with the kids.

Which means she moved to the town of. . .Pahrump.

I wish I could tell you that it was a quaint little cozy city with white picket fences and the scent of fresh flowers in the air.

It was more like a city from Stephen King’s book Desperation with trailers sporting rotting sideboard and the scent of dead bodies in the air.

When we moved there we were sold on the idea of Parump becoming an up and coming city. With the housing prices sky rocketing in Vegas, we thought it would be an excellent idea to purchase a house in another town and wait for their market to increase. We thought there would be an influx of buyers recognizing the beauty and the quiet peace of living in the middle of the desert.

At least. . .this is what my realtor told me.

“Buy here! Buy now! You won’t regret it when your house doubles in value in a year!”

It didn’t work out quite like that.

Apparently everyone else spotted what I missed when touring Pahrump. The poverty, high rate of meth use, decaying landscape, trash, and a disturbing amount of flies. I guess the fact that Sherry’s Ranch was just down the road didn’t encourage families to move there either. Yes, this is a brothel.

What in the hell were we thinking?

And then I asked my mom to move there?

Granted we technically didn’t live in Pahrump. We lived in a track community about 5 miles outside of town.

It wasn’t far enough. The trickle of garbage, fly larvae, and stench of unbrushed teeth eventually made it’s way right to my front door.

The housing market in Vegas started on its downward spiral the year after we moved, which subsequently really plunged the value of my house into the toilet.

After my mom moved in with us she began to recognize that my optimism when describing my city was really just an act of desperation to get her to move to Nevada.

I used to tell her “It’s really not that bad. You’ll get used to it.”

I think she wanted to believe me at first until one afternoon she told a coworker that she had a blind date that night. The woman looked at her with hope and jealousy in her eyes, and sincerely asked “Does he have all of his teeth?”

That was the last straw for my mom.

It also didn’t help that her date turned out to only be in possession of most of his teeth and then offered her a sad plastic rose at the end of the evening.

She stayed though. She didn’t hightail it out of there fleeing like a woman who is being chased by smelly, aging, toothless men.

It did, however, end her dating career in Pahrump.

Can You See Me? I’m Here In The Darkness. (Part 4)

24 Feb

I spent the last two days attending the Blind Cafe and then the 2013 TX Deaf-Blind Symposium. Because of these two events my perception of Oli and some preconceived notions of her abilities/disabilities have completely been swung around and turned on their heads.

Where I have focused a lot of my time on what she cannot do because of or what she will not do because of .I am now seeing exactly what she is capable of and what is possible if I give her the chance. Although I really felt like I had given her lots of opportunities to explore the world and chances to communicate, after talking with blind adults and listening to experts in the field, now I feel like. . . Holy shit! I still have been regarding her learning opportunities in terms of what I see as limitations because of her disabilities.

While I was sitting in the darkness at the cafe a striking realization came to me when the wait staff started answering questions. I hate to say that when I first see a person with a disability, I see a disability. I’m not supposed to see that right? Because my daughter has a disability? But I still do. I don’t like that about me and I really try not to. I realized that one of the things that was so wonderful about listening to the blind adults speak in the cafe was. . . I didn’t see a disability. I couldn’t! And it was great. All I heard were intelligent, funny, nice people speaking. And then I started thinking about what an advantage they have over all of the rest of us. They honestly get to know people in a fast, genuine, real way bypassing all of the visual judgemental nonsense that sighted people have.

Always aspiring to be one of those “good” people who doesn’t judge people by what they look like, what they’re wearing, or how clean they are (although I’ll bet blind people notice that one even quicker than me) I suddenly started thinking of Oli as. . .lucky. I stopped viewing blindness as something I would never want for her and although I still wish she wasn’t, I started looking at all of the good things about blindness. Like seeing people by way of her heart and judging them by the truth in their words and the honesty in their voices.

I had a moment when I was sitting in the dark, listening to the band play, that I was overcome by sadness. Silent tears poured down my face as I sat there thinking about how hard it was. Walking around not knowing where I was going, trying to find my food and not knowing what I was eating because nobody told me. Tasting food that I HATE and not knowing if I had a drink. Wanting to wipe off my hands and not being able to find my napkin. I felt helpless. I felt alone.

But as I sat there crying quietly so no one would know, I started to recognize that feeling. I remember spending a lot of my time feeling that exact same way in the first years of Oli’s life. Lost and alone, crying silently in the dark. I welcomed that feeling like an old friend and greeted her with open arms without even realizing who she is. Who she really is… is my own self pity. My own fear, ignorance, and judgement.

I opened my eyes, dried my tears and sat up straight in my chair.

NO! No more!

I will not allow this twisted friendship to continue! I will not welcome you into my heart! I will not pretend anymore that you will stay for a short visit and then let you live on my couch for years!

You Miss. . . are no longer allowed in my front door.

I am not helpless, weak, alone, unheard, unloved, or in this by myself. More importantly, this is not about me.

This is about Oli and she is none of those things either.

(Thank you for reading about my experience at the Blind Café! If you want to know more about it or want to know if it will be coming to a city near you go to www.theblindcafe.com The End.)

Can You See Me? I’m Here In The Darkness. (Part 3)

24 Feb

As I concentrated on that feeling of smallness and aloneness, my husband nudges my shoulder propelling me out of my reflection.

“Hey Shannon? Have you tried shaking your head?”

“No.” I reply laughing at his enthusiasm for the experience.

“Try it. I’ve been doing it for the last 5 minutes.” He chuckles.

I start shaking my head back and forth, imitating Oli’s constant head movement.

“What’s it doing for you?” I ask Seth after a minute.

“I feel like I can hear the sounds around me better. I hear something different each time I turn my head.” He tells me. “What are you getting out of it?”

“Dizzy.” I respond. “I could only do it for a minute before I started feeling like I wanted to throw up.” I am a person who couldn’t even ride the Teacups at the county fair without wanting to throw up.

While I was sitting there my eye was continually drawn to a little red light on the ceiling. I’m guessing it was a smoke detector light or something like that. In the darkness I could orient myself to that light. Every once in a while another small light would be illuminated in the back of the room. I think it was from staff coming in and out and lifting a curtain.

Although I was WAY more secure sitting in my chair and not walking around in the dark, I was immediately drawn to any kind of change in the blackness. When I would see that little bit of light, a tiny tiny minute change in the texture of the dark, my body seemed to be able to orient itself to it. I instantly knew where I was in space. I didn’t feel so lost. I began to realize why it has taken Oli so long to be aware of where her body is. I began to recognize the HUGE importance of teaching her orientation with regards to herself and her environment because she doesn’t have any kind of light perception.

All of a sudden the lessons that I had been learning and teaching her made absolute and complete real sense to me. A light went off and I felt it. I felt why it was so important.

“It’s now time for the question and answer part of our night here at the Blind Café. The blind waiters and waitresses are inviting you to ask questions about what it is like living as a blind person.” The man who made this whole night possible, Rosh Rocheleau, stands up and introduces them.

“Everyone who has a question raise their hand.” This statement is met with a nervous, awkward silence and then followed by laughter as the waiters begin to laugh. Oh? It’s okay to have a sense of humor about this whole thing?

I think sometimes people are so insecure and uncomfortable around people who are different from them that they forget that they are just like everyone else. They are smart, funny, happy, real people. Except for the fact that they cannot see, they are just the same as you. The blind wait staff made us feel like it was okay. It was okay to ask the typical questions about blindness. They were so comfortable and confident in themselves, they tolerated the ridiculous questions and were happy to dispel many myths. I have to say, I was slightly annoyed at some people’s stereotypical questions about blindness. However, I am not afraid to admit that I too, have had similar questions when I first learned about blindness.

People asked questions like “Do you see in your dreams?”

Answer: “No.” People who have been blind since birth don’t see in their dreams because their brains just don’t work like that. They have never seen anything so their subconscious has no reference to input visual pictures into their dreams. They dream in smell, sound, and touch.

“Are your other senses super enhanced? Did they become heightened?”

Answer: “No. We don’t develop super powers like Superman.” A blind person’s hearing and sense of smell are the same as everyone else’s. If measured I’m sure it would be at a normal, appropriate level. Blind people just learn to use their senses better than you or I. They pay better attention to things that we generally don’t because we experience our world about 60% of the time through vision.

“Do you hate it when people say things like ‘Did you listen to American Idol last night’?”

Answer: “Yes. Absolutely. I try to be nice about it and if someone says ‘Did you listen to ….’ I respond, ‘Yes. I watched….last night.’ You don’t have to adapt your vocabulary just because I can’t see. I still use words like: see, look, watch….because they are acceptable terms in our language.”

“What is another one of your pet peeves that people do to blind people?”

Answer: “I hate it when I go out to a bar or restaurant with my friends and the bartender asks my friend what I want. They don’t ask me. They’ll say things like ‘What does he want?’ You can talk to me. Hello! I’m standing right here! I also hate it when I give them my money and they hand my change back to my friend. They never hand it to me. Ummm….it’s MY money. You can give it directly to me. Sometimes people treat me like I’m a child or incapacitated and I hate that.”

“What is a relationship like with another blind person vs. a sighted person?”

Answer: “Really, it’s the same. There is just a much bigger learning curve and much more teaching involved in dating a sighted person.”

(Check back again. I STILL have more to tell you. I could probably write a whole book on this experience:)

Can You See Me? I’m Here In The Darkness. (Part 2)

23 Feb

As I continued my experience randomly selecting food and taking small fearful bites (you never know when they would sneak in another olive, or infinitely worse, a bit of cilantro) I start listening to the conversations around me. I turn my head to the left and listen.

Perk. No one could see that I was eavesdropping.

They were talking about what brought them here tonight. Most people had just heard about it and thought it would be an interesting thing to try. I speak up and say that I have a blind daughter. They start asking me questions about her and want to know what she has to say about blindness. I explain that Oli has autism and doesn’t talk. A woman across from me and to my left starts to tell me about her friends daughter who is also autistic. We are interrupted by a loud voice behind me.

“Seth’s wife? Seth’s wife?”

“I’m here!” I call out.

Were you wondering where my husband was during my first moments in the café?

Where else?

In the bathroom. Minutes before we followed the waitress behind the curtain and stumbled into the darkness, Seth decides he has to pee.

I guess the line was really long because he hadn’t returned when it was our turn to be seated. I knew he would find me eventually.

I grab his hand, well. . .I try to grab his hand, but really just keep grabbing our waitress Faith’s hand.

“Nope. Your still holding onto Faith.” She tells me as she tries to guide me to Seth’s hand.

“See? Woman hand.” I touch her smooth hand. “Man hand” She laughs as I finally grasp hold of Seth.

“Ahhh. . .very important detail. Smooth soft girlie hands and rough man hands.” I say giggling about my complete ignorance.

I really need to concentrate and let me other senses take over. I am focusing on the blackness with my eyes. Opening them wide and trying to discern any tiny shape, form or different shade of darkness. There was nothing and I am disoriented.

After Seth is seated I turn back to my left and try to speak to the woman about her friends daughter again.

“So your friend’s daughter has autism?” I speak in the direction I had before.

There is no reply.

My voice seems small and gets lost amidst the other conversations. I have no other way to get her attention because I cannot make eye contact with her and don’t know where she is to touch her arm. I don’t even know her name.

All of a sudden I feel very alone and lost. I feel unseen and unnoticed.

Is this what it is like for Oli? She can’t see me and she can’t talk to me.

Does this sweet little girl feel unnoticed, unheard, lost and afraid in her world of darkness?

I slump in my chair as my heart begins to feel unbearably heavy. I sit back as those startling realizations hit me and think about that moment.

I think about how I am feeling at that exact point in time and try to burn it into my brain. I don’t want to forget it because I am learning. I am finally learning a very small part about what it is really like living in Oli’s world.

(Check back later. I have more to tell you!)

Can You See Me? I’m Here In The Darkness. (Part 1)

22 Feb

I had the AMAZING opportunity to eat dinner last night at the Blind Café. Dinner and music in the complete darkness.

“Hold on to the shoulder of the person standing in front of you. Okay. Everyone ready to experience the Blind Café?” The woman at the front of the line leading us into the darkness has an advantage. An advantage that normally, in the sighted world she lives in, is a disadvantage. The woman in the black dress, holding a long white cane…is blind.

I quickly introduce myself to the woman in front of me and hold tightly to her slim shoulder.

The line begins to move. I walk behind a heavy white curtain and am immediately plunged into pitch blackness. As I took my first blind steps into the café my heart started pounding in my chest. I didn’t know where I was and I didn’t know where I was going. I simply had to trust the woman in front of me and hope that I didn’t walk into anything or fall over.

“Watch your head!” the woman in front of me suddenly shouts.

“What? Where?” I am ducking my head and swerving to avoid an unseen attacker.

“Left? Right? Where is it? What am I watching out for?”

No details are given. Those were the beginning moments that made me acutely aware of the importance of descriptive details when speaking to Oli about her surroundings.

We all follow in line until we reach our table. Our blind waiter begins to help each of us find our seat. We were told that our food would already be waiting for us on the table. I cautiously sit down and move my hands across the table.

What am I touching?

I have no idea.

There’s some squishy stuff to my left at 10 o’clock. There is a bowl of little balls and a short, fat, cone shaped object beneath the squishy stuff. The plate in front of me has a large, papery thing on it with a stick poking out of its center. Above that is more wet squishy stuff on little flat circles. Someone at my table said that there was bread in the middle of the table. I slowly reach my hand out and above my plate. I find more little balls. I move to the right. What is this? It’s slimy and wet. Now my fingers are dripping with a slimy oily substance. Where is my napkin? Did they give us napkins? Do we have utensils?

I search to the right of my plate and thankfully find my napkin. I also find a plastic fork. I contemplate using my fork to try and stab at some of my food and then quickly realize how pointless that seems. It will be way more efficient to use my fingers. Beside how will I know what I am eating unless I actually pick it up with my fingers? I find the bowl of little balls again and search for the cone shaped thing. I find it and decide to pick it up and smell it. My senses should be enhanced right? Since my vision is gone. Wrong. Total myth! I can’t smell it at all. It smells like something, but I have no idea what? It smells like my fingers and whatever that slimy stuff was.

After touching everything on my plate and probably everything on my neighbor’s plate too, I couldn’t tell where my food stopped and hers started, I decided to taste something. I find the squishy stuff on the flat circles and pick one up. I identified the circles to be crackers. I could feel the salt and circles. I raise it to my lips and take an apprehensive bite. Olives! Aaaccckkkk!! I HATE olives. The squishy stuff was some kind of spread. I don’t know what else was in it, but I could taste olives. I put the cracker down. Do I have a drink somewhere around here to wash the nasty olive taste from my mouth? I feel my way a little farther to my left, past my plate. I find a water bottle. Of course, I didn’t know it was water until I took a sip.

Moving on.

I’m really getting brave with my hands now. I find the bowl of balls again. I pick one up and pop it in my mouth. A grape. Yay! Win!

I pick up another ball. I think it’s another grape. Wrong. Olive! What-Is-With-The-OLIVES!! Tricky, sneaky, blind café.

FYI. An olive feels like a grape.

Seth Was On The Teacups; I Was Still On The Tornado

21 Feb

“Home is where you are loved the most and act the worst.” ― Marjorie Pay Hinckley

I remember that first year of Oli’s life being full of incredible pain and sadness. I remember wishing that she was older so I could just get past all of those feelings. I thought that she would just hit some magical age and all of those feelings would just disappear in an instant.

“If only she was 6 months old…”

Then she turned 6 months. Nope. The pain was still there.

“If only she was 1…” Nope.

I couldn’t understand why I just couldn’t get over it?

Seth made a comment when Oli was about 6 months old that he was so glad the first 6 months were over because he felt so much better. The roar of our wild roller coaster ride had dulled to the excitement of the Teacups.

I looked at him and smiled.

“Yes. Me too. I feel the same way.”

I didn’t feel that way at all. Not one tiny bit. I felt exactly the same as the moment when the doctor said she didn’t have any eyes.

I…was stuck.

I feel like I missed enjoying Oli as a baby because I spent every waking moment worrying about her.

When she turned 1 and it was time for her to get her eyes I thought that, that would be the moment I had been waiting for. She would get eyes and everything would be right with the world again.

Nope. It didn’t happen then either.

Don’t get me wrong, it helped. Once her eyes were painted, I didn’t feel like I had to hide her in her car seat when we went out to avoid the stares and the comments.

It made it a little bit better, but it turned out that it wasn’t her appearance that was bothering me. She was beautiful either way.

The first couple of days after she got her first pair of painted conformers was a mixture of highs and lows.

(Her first pair fit perfectly and were not crooked.) The moment Beverly put them in and turned Oli around to face us was incredible. Suddenly my girl had perfect, beautiful blue eyes.

IMGP0466

She had eyes.

We couldn’t stop staring at her, turning her this way and that. Examining her face from every possible angle. Oli had a funny look on her face, feeling the emotion in the room.

“Oh, Oli. Look at you! Look at your eyes baby! You’re so beautiful!” I gushed over her and cried with emotion.

We got back into the car and started the drive back to Las Vegas. Oli was still in a car seat facing the back seat so I couldn’t see her face when I turned around to check on her. I found myself making up excuses to stop the car. Suddenly I had an attack of the munchies, the thirsties, and needed 10 bathroom breaks on the drive home. Of course I had to take Oli out with me. (Even though Seth was still in the car.) I would get her out of her seat, pick her up, and then spend 5 minutes just staring. It was an amazing day.

The next morning the rush of that high faded and I began my descent to another low.

They had given her a pair of eyes, but she still couldn’t see me with them.

My girl still couldn’t see.

Why Are They Crooked?

20 Feb

“One of the reasons I blog is because I can’t afford
to pay for proper therapy.”

Once we finally arrived in LA it was one of those hurry up and wait moments. After what seemed like hours but, really was only 20 minutes, the receptionist called Oli’s name.

“Have a seat and Beverly will be with you in a little while.” she tells us.

A little while? I was practically bursting from my skin with impatience.

The ocularist, Beverly walks through the door a few minutes later.

We started out with Beverly’s partner, Steven Haddad but transferred to Beverly after a few visits. She was working more on different custom made conformers although Oli’s had never been custom fit. What I mean is, no mold was taken of her eye sockets and then a conformer made based on the mold, like it is now.

I would have preferred to stick with Steven.

Beverly was nice, but she would just never listen to us as parents. She was a rough spoken, tall, blond, older woman who liked to think that exactly what the prosthetic looked like or how it was positioned didn’t matter.

I didn’t really care at first when it was a little crooked and never seemed to sit straight. After a few appointments, I started to get annoyed.

“As long as it doesn’t bother her, it doesn’t matter that it looks like one eye is looking at the ceiling or that one is turned in. The point is that it is bigger and it’s in.” she would tell me.

Yeah, Beverly it does matter because it bothers me.

I didn’t want her eyes to look crossed or rolled toward the ceiling.

She never listened though. I should have been more vocal about it looking right.

After all, we were driving 6 hours one way and spending about $1000 on each eye.

I guess I just didn’t want to make a big fuss and trusted that she knew best because she was the professional. This was a common theme in the first few years of Oli’s life. I just trusted that everyone treated and loved Oli like I did. I thought that if they were teaching or caring for her they would give it 100% each and every time.

Now I’ve learned that, that isn’t always the case. Most of the time it is, but I’ve learned to trust that nagging feeling in my heart that tells me something isn’t as it should be.

I trust my abilities as her mother and know that I will always do what’s best for her and if it differs from what someone else is telling me, I have the right to say no.

It is my job to always give 100% because it’s not always the job of everyone else even when it should be.

IMG_0282
See how her right eye looks like she is looking at the sky.

Real, Fake Eyes

19 Feb

“Never forget that anticipation is an important part of life. Work’s important, family’s important, but without excitement, you have nothing. You’re cheating yourself if you refuse to enjoy what’s coming.” ― Nicholas Sparks, Three Weeks With My Brother

A few days before Oli’s first birthday I woke up after only sleeping a few hours. The big day was finally here. The biggest day! She was getting her first pair of painted prosthetic eyes!

I could hardly contain my excitement. I couldn’t even imagine what she would look like. All of those feelings returned from when I was pregnant and would lie awake at night trying to picture her.

Before she was born I imagined her with big brown puppy dog eyes, long full lashes, and a sparkle that would melt everyone’s heart. Now I was imagining the same thing minus the long lashes and the sparkle. Little did I know how fantastically real, ocularist’s can make fake eyes. That sparkle was there, just painted on.

I rushed everyone through breakfast and we all piled in the car for the trip to L.A.

The drive seemed to take forever. Seth and I passed the time talking about what we each thought she would look like and what color we were going to choose.

“Brown. Or maybe blue. Kekoa has blue eyes. Or green like yours?” I couldn’t make up my mind.

“Blue. Kekoa and Thalia both have blue eyes and her little left eye looks like it is blue.” Seth makes the final decision.

“Blue it is.” I honestly really could have cared less by this point. All of those dreams of big brown eyes were receding from my mind and by the time she was 1 year old I just wanted her to have any kind of eyes. They could have been purple, red, or painted like cat eyes and I would have been absolutely thrilled.

Months and months of staring at blank eyes had made me realize how much I wanted to look at a pair of real looking ones. Although we had shed the ghastly pegs months ago, I was now anxious for the conformers to be painted.

I knew that I would love them, but I had no idea how much the prosthetics would change her whole face and appearance…

IMGP0074
Oli before she got her painted prosthetics.

Fasten Your Seatbelt, This Road May Get Bumpy

19 Feb

funny-mom-quotes-brain-cells-for-kids

It was sometime around this point in Oli’s life that I decided I would learn braille. I mean, why not, right? My daughter was still in diapers, had about 4 teeth, could say one word and had just learned to sit up. Why wouldn’t I want to learn braille so I could start teaching her immediately something that blind kids don’t really learn until they are about 5 years old(give or take-I’m not completely sure because Oli hasn’t even started it yet. So glad I ran that gauntlet 5 YEARS AGO!!).

That picture of the crazy mom at the top of my blog, that is cartoon me. She has blond hair because what suburban house wife/stay at home mom doesn’t picture herself as a smoking hot blond bombshell. Or is that just me? Maybe I watch too much reality TV.

I love how chic it is to say “housewife” now. Much better I say that, than tell people I don’t have a job or tell them I take care of my 3 children…all day…everyday…and I never get out of the house…or put real clothes on. . .or have any friends…

See how she’s holding her head. That’s me totally flabbergasted by this whole crazy, loopy, bumpy path that is the road of a mom with a child with disabilities.

Before I had kids my road looked like this:

road 1

It was smooth, newly paved, no potholes and was 100% safe. I didn’t even need a seat belt.

When I decided to have kids it looked like this:

road 2

Highs and lows, a few tiny pot holes, but I could still see where I was going. There were beautiful flowers by the side of the road and sunsets and rainbows in the distance. (I’ll bet you didn’t know that I am also an artist. I will now add that to my resume of blog writer, magic Q-tip eye ball manipulator, Binky locating expert, and projectile vomit catcher.)

After Oli was born my road started looking like this:

road 3

Most of the time I can’t even see where the hell I am going and have no clue where to turn next. I just bump along, twisting, crashing through potholes the size of Connecticut, and try to avoid the boulders falling on my head. A 5 point restraint race car driver seat belt is required for this road. It gives me a terrible headache. That’s also why I’m holding my head.

And I’m holding it because I get crazy ideas like learning braille when my baby is 8 months old and I run with them full force, balls to the wall. It makes my head spin so I’m trying to hold it on so it doesn’t fly off while my mind is traveling at 500 million miles a minute.

imagesCA5W00WF

I might have a few issues, but I did learn un-contracted braille that year:)

I probably get my neurosis from my mother. She learned un-contracted and contracted braille that same year. Along with the numbers, math, and maybe music? Basically the whole shebang of braille. She was ready to open up her own little braille school and teach all the little blind babies of the greater Las Vegas valley.

Never underestimate the love that my mom has for her grandchildren.