Tag Archives: newborn

Open your eyes.

23 Sep

4.

Oliana entered this world at 11:49 pm on May 10, 2007, with her pale, almost translucent eyelids closed.

Gazing into the dark depths of my newborn’s eyes was something that I had imagined as my belly grew heavier with pregnancy. I visualized forming a deeper connection with my tiny new daughter as the nurse wrapped her in a warm blanket, placed her in my arms and I peered into her eyes for the first time.

The pictures that I had seen in my mind’s eye of this moment were unceremoniously ripped from me by a destiny that I couldn’t yet understand.

The delivery was so quick (and painful) and the moment that she came into the world, pink, wet and screaming, I was unaware that my world was about to shatter to pieces.

The neonatologist, who had assisted with her delivery at my request, carefully examined her on the warmer. At 35 weeks, there’s always a slight concern about the baby’s lung development. Thankfully, Oli’s lungs appeared to be in perfect condition as she lay there, pink and crying. After a thorough check-up, the doctor reassured me, “She looks perfect. Good job, Shannon. Let me know if you need anything else,” he was eager to leave the delivery room.

Although he was certainly willing to come to the delivery, my labor was not necessarily something that we wanted to share as coworkers. II completely understood his urgency to make a quick exit and, unable to stop myself from blushing, softly uttered my gratitude as my legs remained splayed apart, now inconveniently numb and confined to the stirrups.

That morning, I had debated even asking him to come to her birth, not wanting to experience this exact situation. Ultimately, the health and welfare of my infant outweighed my vanity and dignity. Even if that meant never looking this doctor in the eye again. If she needed help, I wanted a well-respected neonatal physician in the room, ready to act. Now that everything turned out okay and she was fine, I was second guessing my decision. There certainly were aspects of my body I had never intended to share with a colleague.

Once he departed, the nurse placed Oli on my chest, and at first, everything seemed normal. However, after a few minutes, I couldn’t help but notice that she wasn’t opening her eyes. This struck me as odd, as my son had opened his eyes immediately after birth. Oli seemed to be keeping hers tightly shut. I tried to dismiss the growing unease in my chest, but the feeling persisted, a gnawing tightness whispering again…something is wrong.

The nursery nurse eventually came in to whisk her away from the warmth of my chest. She took her back to the nursery to gently clean her up, administer her vaccines, and apply medication to her eyes, which are standard procedures for all newborns at the hospital.

“Go with her” I instructed my husband, not wanting to leave her alone for a second within the sterile white walls of the hospital. This protectiveness would persist for decades, and Oli would never spend a minute alone without one of us while hospitalized.

Seth accompanied the nurse to watch over our new daughter. When he returned, he shared with me that she was slightly cold, so they placed her under a warmer to raise her temperature. Then he delivered news that heightened my sense of unease.

“The nurse couldn’t open her eyes to administer the eye drops. She expressed concern that her eyes may still be fused shut,” he told me, his eyes betraying a significant amount of fear.

“What? That doesn’t make sense. Babies’ eyes typically stop being fused shut after about 23-24 weeks. She’s 35! No, they’re not fused. They’re just swollen. I’m sure they’ll be fine in the morning,” I responded, trying to reassure both of us.

“Well, maybe” he responds nervously. “But the nurse intends to call her pediatrician first thing in the morning to come and examine her. I’m sure you’re right. They’re probably just swollen,” he appears slightly more at ease, relying on my medical knowledge of newborns.

Despite my efforts to dismiss my concerns, deep down, I knew something was not right with her eyes. She should have been able to open them, or at the very least, the nurse should have been able to.

However, at that moment in time, I forced myself to believe that she was fine. I was exhausted and didn’t have the compacity to explore what that could possibly mean. Even if I had, the result was something I couldn’t have possibly imagined.

The nurse brought Oli back to the room and I tried to sleep. By then it was nearly 4:00 am.

Before I did, I whispered a heartfelt prayer to heaven, the first of many for my sweet girl, which went unanswered.

 “Please open your eyes, baby girl. Please open them and look at me.”

5.

I awoke a few hours later to a nurse gently shaking my shoulder. “Mama, it’s time to feed your baby.”  

Already? It felt like I had just closed my eyes. I looked over into the clear, plastic bassinet that held my sleeping daughter and then at the clock; 5:30am.  

“Will you hand her to me please?” I ask as she lifts the scratchy hospital blanket to palpate my deflating and squishy abdomen. We were transferred to the postpartum floor a few hours after delivery. Unlike the hive of activity on the labor and delivery floor with the sounds of monitors beeping incessantly and the hushed and urgent voices of the doctors and nurses, this unit was quiet and calm. Except for the periodic kitten-like mews emitting from babies still unhappily protesting being ripped from the safety of their muffled, dark and warm environments, this floor is silent. The babies, still unaccustomed to the cacophony of unfamiliar sounds and the cold chill that assaults their once tightly curled limbs, cry out as they flail in the open air.

My infant, cradled in her soft blanket, sleeps peacefully and I watch as the nurse leans into the bassinet.

She hands me my tiny baby burrito swaddled in a light pink and blue striped blanket.  Oli has a fine covering of light blonde peach fuzz on her head. I smile, remembering how focused my attention was on her hair, prior to her delivery. She is bigger than I had expected her to be but still so tiny, weighing only 6lb 0oz and 18 inches long.  Her little fists clenched tight; she pulls her knees to her chest to object the sudden temperature change as I unzip her onesie.

I unfasten the sticky tabs on each side of the reusable diaper to change her and run my hands along her soft new skin. She’s perfect in every way. She has a perfectly round head, ten tiny fingers, ten tiny toes and sleeps so peacefully, all curled up not realizing she now has the entire universe to stretch out in.

I peer into her serene face and will her to look at me. Taking my finger, I run it along her face and tickled under her almost nonexistent chin, trying to wake her. She stirs and slowly turns her head from side to side, attempting to shake this annoying intruder trying to rip her from her slumber. She doesn’t open her eyes. “Oli. Oli. Open your eyes Oli. Please? Please open them for me.” I beg her as she continues to keep them tightly closed.

I glanced over at the snoring lump draped across the couch along the far wall and considered waking my husband, not wanting to obsess and worry alone.

It was probably nothing. A swollen face… nothing more. Nothing to be concerned about. Despite my self-assurances it was becoming increasingly challenging to maintain the illusion that everything was okay.

I couldn’t imagine what would keep a baby from opening their eyes. This was new territory and something I had never encountered while working.

Stuffing the uncomfortable feelings being stirred within my mama heart back down, I put my delicate little flower to my breast and began to nurse.  I would continue to stuff all of my disquieted feelings, until eventually, like a beach ball being held beneath the water, the constant effort led to overwhelming exhaustion, and they exploded to the surface.

Why would He do this to me?

1 Feb

“We love the things we love for what they are.”

― Robert Frost

HPIM0597

I really should have put this picture at the beginning of my story. This is Kekoa and me in the background. Yes, I was about to cry when it was taken. The picture accurately emphasizes and portrays everything that is me. When I look at it I see someone who looks absolutely terrified of the reality that has just come out of her body. Why God would choose to give someone like this a special needs child is beyond me.

I mean look at me.

I was a wreck and he was fine.

When we got home from the hospital my husband loaded the pictures from the delivery onto the computer. He pulled up this one and burst out laughing. “Look at your face! You look like you are convinced that the nurse is really a child predator and is about to run off with your baby.”

I came over and looked down at the computer screen. Yep. That is exactly what I was thinking. “Don’t laugh. I just love him so much.” I try to explain very near the brink of tears. How can he not understand? I mean this little person just came OUT OF MY BODY! I made this little guy and he is perfect. It all just became so real. When they’re in your body it’s just a faint idea. Especially when it’s your first. Once they actually come out it’s a whole new ball game.

I think I look the way I do here for a couple of reasons.

First of all, I was totally mortified by the whole child bearing experience. The gush of body fluids, squishy stuff and baby from my body was beyond embarrassing.

How would my husband ever look at me the same?

Second, I really hadn’t given the whole idea of baby = with you the rest of your life, a sufficient amount of contemplation. I just wanted a baby. But once I looked into his eyes and felt a kind of love that I had never experienced before, I knew that I was in trouble. My heart felt like it was bursting with love and breaking with fear all at the same time and either way I looked at it I was in danger of literally loving this little guy to death.

Once the nurse placed him on my chest, cleaned him off, and then took him away to the warmer to wrap him up and snap this picture I was totally and completely smitten.

I also started feeling other things that I had never felt before. A fierce protection of my little boy that was almost crushing when the nurse took him from my arms.

In the picture I am looking at the nurse like “OMG you are totally going to break him. I do not trust you at all. Give him back. Give him back before I cry.”

In what world does it make sense for Life to give this kind of mom a special needs child? I couldn’t handle the thought of raising this little guy, who was completely normal.

Can you imagine the picture of me after I found out that Oli was blind?

Or maybe this picture explains completely why I was given a special needs child…

Her eyes were closed

21 Jan

Life is what happens to you while you’re busy making other plans.” – John Lennon

 

 

Oliana entered this world on May 10, 2007 with her eyes closed.  I never got to look into my baby girls eyes and form that instant bond with a ‘Hey! I know you! You’re the one I’ve been loving since the day I peed on that stick!’ 

Her eyes were closed because they were fused shut. They had not developed.  Severe bilateral microphthalmia.  That’s what it says on all of her paperwork.  It probably should have been etched on her forehead for all the times we referred to her as having “it”.  This had become who she was to me and to people around her.  My baby with severe bilateral microphthalmia.  Somehow these 3 words would become as familiar rolling off my tongue as her first name.  Which is very very wrong.  But that’s what it was.  She had become not my new baby girl.  But my baby girl born blind.  Born with severe bilateral microphthalmia.  She had no eyes.  These words were repeated over and over in my head during the next few months.

 

The moment the doctor said blindness, the little blond haired, brown eyed girl I had been dreaming about for 9 months died.  She died and I didn’t know that I was allowed to grieve for her.  I thought I had to become this perfect mother of a special needs child.  I could not allow the outside world to know that I was hurting so terribly inside.  In place of the little girl I had lost was this tiny baby with blond peach fuzz on her head and no eyes.  A baby I didn’t think I was capable of taking care of, nor did I know if I wanted.  I knew I could never abandon her.- (gasp) What would the neighbors think?-  But I didn’t know if I would be able to love her like I loved my son.  Because she was different.  If she didn’t have eyes what else was wrong with her?  Was her little brain a mess too?  What if she never walked or talked or could eat on her own? What if she never went to college or got married.  Even more horrifying, what if I had to take care of her for the rest of my life?  No. They got it wrong.  It has to be wrong!  I never signed up for this.  I ordered the little cute blond girl with pigtails in her hair and brown eyes to match mine.  I remember the day I got married.  I signed a bunch of documents including a marriage certificate, a give-up-your-last-name-and-assume-your-husbands-identity- page, and I definitely signed the one where you check the box under, you will have a happy life with rainbows and butterflies raising 2.5 HEALTHY children.  Not a disability.  I DEFINITELY did NOT check that box!! They delivered the wrong baby girl.